Wow a lot has happened since my last blog! I went to the University College London Hospital to see Prof G's team.  I saw a lovely doctor who's name I forget now!!  She went through a very thorough questionnaire with me and examined me. I was in there for about 30 minutes or so.  At the end of the examination she finished writing her notes and told me that I now have an official diagnosis of EDS type 3, she is writing to my doctor to get her to refer me to podiatry, hydrotherapy, occupational therapy and best of all PAIN CLINIC!!!! I will need physio on my back too because I have lordosis and the pain is quite intense with it.  I am so relieved to have a diagnosis and more so a plan of action to help me!! I could not be happier!! Well I could but this is as close as it gets lol.

I am also now on ESA.  I have a huge form from ATOS to fill in and maybe an assessment in the future. I don't understand all these groups and things but I am sure I will get the hang of it lol.  DLA next...