So after making a private appointment to see Professor Grahame in London (for £300 I might add!) I got a letter in the post saying that my GP had referred me to his team and the University College Hospital London!! I was flabbergasted considering the GP said they probably wouldn't fund something like that when I asked her! The most amusing thing about it though is that my appointment is on the same day as the private I made!!! Good job seeing as I had already booked the tickets and planned to go with a friend!! Talk about a stroke of luck!! Well that saves me £300!! lol
I will be seeing Dr Kazkaz. I have done a little reading on HMS and EDS forums and people seem to have good things to say about her. I am quite excited about this little trip now!
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