So I went to see my cardiologist on 5th. Saw a lady who was taking his clinic while he was away and she was amazing!! She explained everything they found in my echo step by step!! So my diagnosis is cardiomyopathy but I don't know how bad as yet. I have to have a stress test and an MRI to see how much of a risk I am of sudden death. I think maybe I am somewhat of a risk as I have the fainting and dizzy spells and the shortness of breath.
The increased velocity in the left ventricle outflow tract to which my horrible rheumy said "I doubt this is of any significance" is caused by the thickening of the heart muscle making the outflow tract narrower and so the blood is being squirted out like a hosepipe when you put your thumb over the end!! This is causing me all kinds of problems at the moment. Discovered there is a 50% chance I have inherited it too! I don't think this is related to EDS at all...
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