What a year!

Well it  has been a long time since I last blogged!! A quick update about my heart as a run on from last post...
I have a 'sort of type of latent hypertrophic obstructive cardiomyopathy' but it's caused be the EDS they think. My heart and it's parts are too stretchy so when it is under the smallest amount of stress things happen!! My septum bulges and blocks the flow of blood out of my heart into the aorta, my mitral valve is floppy and slightly dilated and I get regurg through it, I also have a dilated left atrium and a dilated aortic valve.  The MRI showed that I have moderate global hypokenisis, basically my heart isn't pumping properly.  I have bradycardia and severe exercise intolerance!

Anyway that's that! Nothing else is being done about it.  I have found out recently I have quite bad sleep apnoea too, which isn't good for my heart!  But I have now got a nice little CPAP machine to help. My Fibromyalgia pain seems to be getting worse but flare ups are further apart, I presume the warm weather is helping. Unfortunately the warm weather is playing havoc with my dysautonomia and the fact I don;t sweat enough! I just pass out at the slightest bit of hard work lol.

This year has seen my headaches and migraines get a lot worse!! Not sure what that is, I suppose some of it will be stress related.

Another thing that I hate this year for is the devastating news I received from my mum.  She was diagnosed with untreatable pancreatic cancer 2 months ago and it is now spreading.  She is taking it well, she is ready for is she says.   She has even sorted out her own funeral and divided her belongings!! I am not taking it well at all though. I can't even begin to even think about a future without my mum!! It's not fair :(

One good thing to happen this year though is  I passed my driving test!! I have my little car, Fanny I called her, and I can now drive the 200 odd miles to visit my mum as often as I want!!

Well that is it for now, I have to drive Amber to work!! Good job I love driving!!